About pat_health

Medical and health care writer and editor. Views are my own

Patients at #HIMSSEurope18: From ‘a’ to ‘the’

Sitges2

To have the patient voice presented articulately from the podium isn’t all that unusual at medical and health conferences these days.

However the fact that this occurred at a major digital and health information technology conference – until recently the domain of companies and organizations wanting to do things to and for patients (often for money) rather than with them – is worth noting.

To its credit, the HIMSSEurope/Health 2.0 meeting in Sitges, Spain did not just have prominent patient advocates such as Marie Ennis-O’Connor (@JBBC) and Anne-Miek Vroom (@annemiekvroom) speaking at plenary sessions but throughout it also reflected a new paradigm of providing health care services and products that patients want, delivered where and when they want them.

Although some feel more can be done: “The most powerful force in health care innovation (the patient) is yet to be unleashed,” said Ennis-O’Connor.

“To me, empowerment is not just having an app with all your health care information, it is about being part of the system,” said Miquel Bru, VP of business development for Made of Genes, during a session on precision medicine. As Vroom pointed out in her address, you don’t need a program or project to work with patients, just ask their opinion and incorporate them into the workflow.

It was Vroom who also pointed out that while virtual care, mobile apps, and telemedicine innovation are all being applauded as breakthroughs for patient care they do not automatically improve the patient experience and can still be challenging for those with disabilities.

In his keynote address, Dr. Robert Wachter, chair of the University of California, San Francisco department of medicine and oft-time critic of electronic records and their impact on physicians, noted that the “perfect patient” ready, willing and able to adopt digital tools to manage their care is not common. Instead, he said, digital tools and information will have to be customized to accommodate patient preferences and knowledge levels.

“There is no such thing as a ‘one size fits all’ patient,” said Ennis O’Connor who also noted there is some concern about the growing gap between digitally literate and engaged ‘super patients’ and those who are not.

While the conference was filled with speakers discussing tailoring their digital solutions to what patients really wanted, Ennis O’Connor challenged people to act on truly involving patients in their work. She said that patient engagement has become a leading theme at conferences (including this one) but said there has been no significant movement to change this rhetoric into a tangible reality.

However, Lucien Engelen (@lucienengelen), a global digital health strategist and patient engagement champion, who served as master of ceremonies for the Sitges meeting said he perceived the tendency to involve ‘token’ patient has been decreasing while meaningful involvement of patients at conferences has been increasing.

And while the yardstick may not have moved as much as patient advocates may wish there was a definite sense here that digital health innovators, policy makers, and providers are starting to view patients as partners and not simply subjects for the next shiny new digital healthcare toy.

Advertisements

Something is happening here … #HIMSSEurope18

Sitges1

You try so hard but you don’t understand
Just what you will say when you get home
Because something is happening here but you don’t know what it is
Do you, Mr. Jones?

                                             Ballad of a Thin Man: Bob Dylan

The problem with a Health Information Management Systems Society (HIMSS) meeting – any HIMSS meeting – is that there is so much going on at one time that it is impossible to craft it into one coherent narrative.

That is the challenge with HIMSS Europe 18 currently underway here in Sitges near Barcelona, Spain as hundreds gather to discuss the latest in digital health and health information technology and to network, network, network. And it’s doubly challenging as this meeting is being held in conjunction with Health 2.0, the health innovation conference recently purchased by HIMSS.

(Now wait a minute, wait a minute you say – you get to go all the way to a resort hotel in Spain, with a clothing optional beach within 5 minutes walk, where they serve wine at the some conference buffet luncheons, only to cop out and say you can’t write coherently about it. Patience please).

As a social media ambassador here and lively live tweeter I can supply you with an endless number of insightful tweets or sound bites from just the first 24 hours. For example:

“We have gone from a paper world to a digital world in a short period of time”: Dr. Robert Wachter

“There is a lot of tokenism in health(care) innovation, and some think you can change or even fix health(care) overnight. It is not about technology, nor about the process, it is about changing the culture of an organization”: Lucien Engelen

“Pay patients and value them as the experts that they are”: Marie Ennis-O’Connor

But while I think these tweets provide a useful running commentary of the meeting they – and even the twin meeting hashtags #HIMSSEurope18 and #health2con – provide only a partial and episodic picture of what is going on.

Individual presentations or sessions are also noteworthy. For instance I have never heard as passionate a presentation supporting the role of nurses in the future digital world as that given by Angelien Seiben and Shawna Butler from Radboud University Medical Center. And Dr. Jordi Sorreno Pons a GP and CEO of the Universal Doctor app jammed so many ideas into his 8 minute presentation on future developments in medical innovation that it was almost incomprehensible.

The big subject areas – patient engagement, big data, artificial intelligence – are all given their own sessions or streams here.  But in the time available they tend to focus on specific projects or regional initiatives.

Certain things have changed from HIMSS or eHealth meetings held 15 or 20 years ago. The digitization of patient records is now a reality and not a vision and patients are not only discussed but included (#patientsincluded) as presenters in their own right.

But as to what all of this means for the future of digital health in Europe or worldwide – we are too much in the moment to have a clear picture given the complex nature of health systems and the endless number of variables that impact such systems.

For the numerous people here with an start-up to promote or an niche application to profile the meeting is a far simpler place.

(This is the first of what we hope will be a series of posts from Sitges)

A parliament of medicine no more: @CMA_Docs changes its governance

 

CMA

The Canadian Medical Association (@CMA_Docs) is not immune to the dramatic changes in governance impacting governments and organizations around the world.

At its annual gathering this August in Winnipeg, the CMA’s General Council will cease to exist as “the parliament of medicine” and a major policy making body, and will be substituted with a healthcare summit aimed at attracting a much more diverse audience to advance the debate about health care in Canada.

For those who have sat through decades of often intense debate by physician representatives from across the country, on issues as important as abortion, physician aid in dying, and the future of medicare, this is a dramatic change. But, frankly it is not a surprising one as the CMA has been transitioning its policy-making processes for a few years now.

While CMA General Council often made great theatre and was guaranteed to attract front-page news for the organization, the issues discussed where often not within the strategic framework of where the organization wanted to head. The CMA has been clear it wants to broaden the funnel for collecting new policy ideas from a council of 200 plus selected representatives from its provincial and territorial associations, to the membership as a whole.

The elimination of General Council will be perhaps the most obvious but, given various announcements on the association’s cma.ca website, certainly not the only governance change being planned by the organization and voted on this year.

For instance in order to better align the CMA with its new mission statement as “empowering and caring for patients”, the CMA Board of Directors wants to add a non-physician to bring the patient representative to its Board of Directors. While a radical step for the CMA, this is in keeping with what many other medical organizations are doing.

That’s not the only change envisaged for the Board. Rather than allocating numbers of Board representatives based by number of physicians in a jurisdiction each province and territory would have just one Board member. This would shrink the size of the Board from the current size of 26 to 18 or 19 members including ongoing representation from students and residents.

The annual general meeting which was always held in conjunction with General Council will continue to expand its role for ratifying business decisions and after this year will move from August to the spring in 2019.

Those who will remember the extensive CMA governance review process that culminated in 2008 with arguably minor changes to governance will appreciate just how much and how fast the world is changing, to see what CMA will be doing this year.

Sir Charles Tupper may not be rolling over in his grave but it will be very interesting to see how CMA members do in keeping up to the speed at which their organization is moving.

Radiology and AI: An algorithm took my job

Radiology18

Radiologists and those who love them sometimes seem to be some of the most insecure people around and radiology seems consistently voted the specialty most likely to be made defunct by modern technology.

In Canada, this perception has been voiced repeatedly over the past decade or two, first with the perceived threat of radiologists on the other side of the world working during our night to interpret scans and provide results when Canadian radiologists are sleeping, and now with the widespread attention given to artificial intelligence (AI) and deep learning and its potential uses in health care.

At last year’s annual meeting of the Canadian Association of Radiologists (@CARadiologists) I pondered whether this year’s meeting of that organization would be leaving it too late to discuss the significant issues revolving around AI and radiology (see my post “(A) I, Radiologist”) given the speed with which the field is advancing.

I need not have worried.

Last week the CAR released a white paper on the role of AI in radiology in advance of its annual meeting this year to be held April 26-29 on the theme of AI in radiology with the learning objectives including: discussing the recent changes that have occurred in imaging as a result of the implementation of artificial intelligence, deep learning, and machine learning in imaging workflows and; discussing the opportunities of big data and artificial intelligence to improve on the diagnostic performance and predictive value of imaging.

As an extensive overview of the topic, the CAR document squarely confronts the main issue at hand, namely that “recent breakthroughs in image recognition introduced by deep learning techniques have been equated in the media with the imminent demise of radiologists.” The authors go on to state rightly that the work of radiologists goes far beyond that of just correctly interpreting images.

“… the complex work performed by radiologists includes many other tasks that require common sense and general intelligence for problem solving–tasks that cannot be achieved through AI. Understanding a case may require integration of medical concepts from different scientific fields (eg, anatomy, physiology, medical physics) and clinical specialties (eg, surgery, pathology, oncology) to provide plausible explanations for imaging findings. Such tasks accomplished by radiologists on a daily basis include consultation, protocoling, review of prior examinations, quality control, identification and dismissal of imaging artifacts, cancer staging, disease monitoring, interventional procedures for diagnostic or therapeutic purpose, reporting, management guidance, expertise in multidisciplinary discussions, and patient reassurance”

However, the white paper’s authors also fully appreciate the potential of AI and state that “to remain current Canadian radiologists will need to follow and contribute to health care AI research and development, embrace the changes in workflow that will be required to support the implementation of clinical AI and adapt to changes in their practice that will improve care of their patients.”

So, while the demise of radiology (again) does not seem imminent, the white paper will bear close reading by Canadian radiologists who wish to remain relevant with some of the most significant and fundamental advances in medicine currently underway.

(Image courtesy of the Canadian Association of Radiologists)

Digital health: A manifesto for the times

Dave_and_Berci

In 2008, Dr. Gunther Eysenbach, editor of the Journal of Medical Internet Research published a paper on the nature of what he termed Medicine 2.0 – and this paper formed the framework for the first World Congress on Social Media, Mobile Apps, Internet/Web 2.0 held in Toronto.

Eysenbach noted that “recent advances in web technologies and user interfaces have greatly changed the design, appearance, stickiness, and pervasiveness of Web applications, and in many cases transformed the way users interact with them. Perhaps equally importantly, it also has changed the expectations of users.” In addition, he said, these advances have coincided with the development of personal health records “with far-reaching consequences for patient involvement, as the gravity shifts away from health care providers as the sole custodian of medical data.”

Eysenbach talked about five major aspects (ideas, themes) emerging from Web 2.0 in health, health care, medicine, and science, which would outlive the specific tools and services offered: social networking, participation, apomediation, collaboration, and openness.

Among the attendees at the 2008 meeting was a Hungarian medical student Bertalan Meskó (@berci) who was to graduate the following year. A year later at the same conference, also held in Toronto, Dave deBronkart (@ePatientDave) gave his first major presentation in Canada around his rallying cry of “Give me my damn data”.

Fast forward a decade: Dave deBronkart, a stage IV cancer survivor, is probably the most high-profile patient advocate there is and Meskó is a medical futurist speaking to audiences worldwide. Together they have just published what they call a Digital Manifesto with six declarations they believe “are essential for correctly understanding what is and isn’t happening in digital health.”

You can read the manifesto yourself – it’s not long and speaks to much that will resonate with those working in digital health or with patient engagement. It talks about behavior change and educated and informed patients working with health care providers to take control of their own health using the manifest new technologies now available.

What I am struck by are the similarities between the Eysenbach piece and the manifesto – despite the gap of 10 years and the very different tone and purpose intended for the documents.

Both reference the significance of new digital tools and platforms and their importance as enablers of change, or in deBronkart and Meskó’s words: “A future where old hierarchies tumble down, the paternalistic patient-doctor relationship is no longer needed and disruptive technologies enable the democratization of care by democratizing knowledge. A future where all these are in place due to cultural transformation facilitated by disruptive technologies.”

The documents and these past 10 years also represent the dedication and common vision shared by many of those who work with digital health – be they patients, providers or researchers. In addition to Meskó and deBronkart, many of those who spoke or participated in the 2008 and 2009 conferences have remained active in digital health research.

“… we could say that medicine 2.0 is what ehealth was supposed to be all along”, Eysenbach wrote 10 years ago. deBronkart and Meskó say “A manifesto can …kindle new thinking among those who do see the light.”

 

 

#Ehealth2018: Beyond the keynotes

ehealth2018_ambassador_badge

Ehealth 2018 to be held in Vancouver, May 27-30 continues to occupy an unchallenged position as Canada’s premier conference dealing with health information technology (IT) and digital health.

Now in its 18th year, the conference shines a light on where Canada stands when it comes to the introduction and implementation of new digital health technologies.

While the keynote speakers at the meeting provide the ‘wow factor’ for those in attendance it is the smaller focused concurrent sessions where one can get a truer sense of what is really going on in research and at the front-lines of care.

A brief review of the sessions and presentations on offer at e-Health 2018 offers some intriguing hints of how the health IT landscape is evolving. Bear in mind the caveat that session titles can often be misleading and relying on titles rather the entire abstracts can often lead – as many conference delegates have learned to their sorrow – to deep disappointment when the talk does not live up to expectations.

This year, even the session headings at e-Health 2018 are more helpful as they tend to be more explicit than most. For example, there is a session titled not just ‘Telehealth’ but “Geography and Telehealth: It’s Not Always Distance”. However, beware over-imaginative session copywriters who can come up with a title such as “Labs, Drugs and Rock and Roll”.

From the session headings it is clear that top-of-mind IT and digital topics such as block chain, telehealth and big data are high on the Canadian agenda this year just as they are south of the border.

Individual presentation headings – as always – range from the meaninglessly vague to the intriguing. It’s worth taking a look at the presenters as well, as this can point to some talks worth bookmarking.

For instance, Dr. Jeremy Theal from North York General Hospital, a leader in computerized physician order entry in Canada is scheduled to talk about “A Novel Provincial Approach to Implementing Advanced Hospital Information Systems”. Long-time digital health stalwart Glenn Lanteigne will be giving a talk titled “Blockchain in Healthcare – Separating the hype from reality,” and another noteworthy presenter will be eConsult pioneer Dr. Erin Keely talking about “Provider Experience – the Fourth Aim of Innovation in Healthcare Technology”.
With patient-centred care once again at the forefront there are also several presentations that seem to merit a look including these two:

  • The Secret is Out: Achieving High Patient Portal Adoption – Selina Brudnicki, University Health Network.
  • Engaged Patients Are Driving Healthcare Innovation and Efficiency – Shannon Malovec, TELUS Health.

As noted above, it is always buyer beware when it comes to picking presentations by title alone but for those of us interested in the use of social media in health care it might be difficult to resist Nishila Mehta’s scheduled presentation on “Data Mining Twitter to Detect Prescribing Cascades: A New Concept.”

However, as everyone has their own concerns and interests it is worth combing the program carefully to find those presentations that provide insights and new information for you personally.

The @CMA_Docs election and Twitter redux

2018-01-09

Five years ago, I wrote about how the two physician candidates to be president-elect of the Canadian Medical Association (@Dr_ChrisSimpson and @GailYentaBeck) were effectively making use of social media and especially Twitter to get their message to prospective voters in Ontario.

It was the first time candidates to lead the national organization for Canada’s physicians had made significant use of social media in their campaigns.

Fast forward (well, slowly advance really) to 2018 and we see four physician candidates in Ontario once again using Twitter to campaign for the president-elect position. But what is spotlighted most significantly is the continued hesitancy of doctors to effectively use social media and digital tools. (The lead article in that 2013 magazine in which I featured Drs. Simpson and Beck talked about challenges for patients in using email to communicate with doctors in Canada – challenges that remain to this day).

Since 2013 there has been only limited use of social media in CMA election campaigns and this is the first time since then that Twitter is being used effectively on the campaign trail by all candidates.

Only one of the current candidates Dr. Darren Larsen (@LarsenDarren) had a long-standing and very strong presence on Twitter but the other three, Drs. Sandy Buchman (@DocSandyB), Atul Kapur (@Kapur_AK)and @PeakMD (Mamta Kautam) have wasted little time in getting up to speed on how to use the platform effectively.

This time around it is not only the candidates who are making use of Twitter but also some of their dedicated supporters and other physicians who are using Twitter to ask questions about where the candidates stand on various issues. The comments and discussions that have been prompted are all informative. Doctors from elsewhere in Canada who are not eligible to vote have been weighing in as have non-physicians.

Sadly it remains a debate in a vacuum… and without a hashtag. With about 34,000 doctors in Ontario eligible to vote in the election, a couple of the candidates still have only a few hundred followers on Twitter so it is unlikely many who will vote are paying attention to any of this discussion and debate. Which is a shame.

While social media use by Ontario doctors in the last year has represented somewhat of a nadir in intra-professional behavior (see my Broken Windows in the House of Medicine), this election so far has shown how a respectful exchange of ideas can take place on Twitter.

Certainly, the webpages of each of the candidates present a much more comprehensive picture of their platforms and positions on important issues. But Twitter and Facebook are being used by these doctors to interact and attempt to differentiate themselves from their colleagues and more voting Ontario doctors should be paying attention … really they should. With the disappearance of most objective medical journalism in Canada, social media is really one of the only places they can find out what their future leaders are saying.

It’s good to see Twitter in use again for this purpose but passing strange that it has taken five years to get back here. Drs. Simpson and Beck? In their own fashion they continue to be two of the most effective physician users of social media in Canada.